ravensong • 1 day ago
chihiro_sang • 2 days ago
ravensong • 2 days ago
lisa1321 • 3 days ago
mindassala • 4 days ago
fed feed list
ravensong • 5 days ago
jiki05 • 6 days ago
Intestines and TEF repair/fixed site all look great. So that's some good news. Plus she's doing good right now. That's the best I could ask for. ?
so g-tube might be a life thing. We don't know yet. The aerodigestive team will now meet and discuss a plan best for her. We see them all again in November. Just going to take it one day at a time like the NICU days. Oh I even got pictures of the scoping. Her stomach, upper
keep food down doesn't really close. GI describes her as a water bottle, tip her and stuff comes up. The problem with that is she swallows it back down but it's going straight into her lungs and then she can't get it out. Hence the 3 cases of pneumonia.
I meant to pm you but discharge took forever in a day. So she has moderate tracheomalacia, not exactly a laryngeal cleft but a notch that can act the same way, bronchomalacia, floppy esophagus like it's been overly stretched out. Oh and the sphincter that is appose to
jiki05 • 1 week ago
There's a lot. I'll pm you tomorrow when we get home. Hopefully going home tomorrow as she's doing good. Was in pain earlier. Long day lol.
They bumped up her triple scope and g-tube placement. We have to be there tomorrow at 5:30am even though it's not scheduled til 7:30 am. I'll keep you posted sis ?. Hoping for the best.
sugarsprig • 1 week ago
whitefall • 1 week ago
Thank you, your cove is lovely too Fed list!
novrain62 • 1 week ago
Good Morning Thank you for feeds! I'm feeding the feed list today.Have an awesome week! Feeding is longer on a mobile for sure! lol